Jordan's Journey: Week 6

Everyone said the NICU life is a roller coaster and it's so true. Last week Jordan was gaining weight like crazy..I mean 1-3 oz a day! He got up to 2 lb 6.5 oz, was eating 19cc of breastmilk every 3 hours and his PICC line was removed! (There's always a but). During rounds the division head, Dr. Savich, decided to give him another round of Ibuprofen to try and close the PDA. We were told that it's a very small chance that it'll close, but it's worth a try ...anything to avoid surgery. So they decreased his feeds to 13 cc and started the treatment. The next day he lost 2 ounces but his belly looked a little full so they stopped feedings all together. We were a little bummed because he lost some and because they had just taken his PICC line out and now had to put an IV in....but they had to do what they had to do. Last night he was given the final dose of ibuprofen. Dr. Desai will repeat the echocardiogram Monday to see if it closed. We've prayed and prayed and now we need your prayers---please pray that the PDA closes. We know surgery is an option but we really really want to avoid it. So please pray with and for us. We are already claiming it because God faithful. So whatever happens, is in His will. 

Jordan also had his eye exam earlier this week. Lots of preemies have what's called Retinopathy of Prematurity. (Google lol) His exam went well and they will repeat it in 2 weeks to make sure it doesn't show any signs of progression. They also warned us that he might be a little irritable after the exam and not to be alarmed if they have to go up on vent settings. The minute they said that I knew what to expect because I know my son. They  went up on his RR for a day because his CO2 levels were really high. However, he's back down on all settings! Thank God! 

As of today they've started his feedings again & will gradually increase over the next few days. They will make no changes to the vent until the echo on Monday. 

This journey isn't easy and it really doesn't get better, but we are getting use to it---you have to or fear and stress will consume you. I use to cry every time I walked into the NICU, but now I walk in and greet each doctor & nurse with a smile. None of this really makes sense but we know that one day it will. For your glory, Lord. 

With love, 

Joey, NaToya & Jordan